If you are interested in becoming a Trustee of the PCPLD Network, please get in touch with us at firstname.lastname@example.org
The current trustees are:
Jason Davidson (Chair)
Jason is currently the chair of the PCPLD Network. He first came across the network in 1999 whilst working in learning disability services which he did for over 10 years. In his day job Jason currently manages Supportive Care Services at the Marie Curie Hospice in Hampstead, London. A registered social worker, Jason has worked for Marie Curie for the last three years. Prior to his current role, he worked in the independent hospice sector and has worked across both health and social care settings for the last 25 years. Jason is not only committed to improving the end-of-life care experiences of people with a learning disability but also to improving the experiences of the staff who provide the actual care and support.
Dr Annie Stewart (Secretary)
Annie’s working life has all been in Devon – initially as a GP principal for 8 years and then for 18 years as an Associate Specialist in Palliative Medicine within a hospice inpatient unit. She retired 3 years ago but retains a firm belief in making excellent end of life care accessible for all. She first became involved with the PCPLD following on from its National Conference being held in Devon in 2010. She subsequently became a member of the Management Group (or Steering Group as it was called then) and early in 2017 became a trustee & secretary of the PCPLD Network.
Steve Mitchell (Treasurer)
Steve was co-opted as a Trustee early in 2017 as Treasurer after having been the independent financial examiner to PCPLD for several years. He has been involved in Finance for all of his working life, firstly with a multinational pharmaceutical company, first as the Area Finance Manager for the Middle East & North Africa Region and then as Commercial Manager for the Middle East & Africa. In 2004, he joined a Hertfordshire based mental health charity (Mind) as Director of Finance and stood down in 2012.
Dr Irene Tuffrey-Wijne
Irene Tuffrey-Wijne has been actively involved as a member of the PCPLD Network from the beginning. She has served as its chair from 2008 to 2014, and is chair of the judging panel of the Linda McEnhill Award. Irene is originally from the Netherlands, where she qualified as a nurse in 1985. She is a member of the L’Arche London Community for people with learning disabilities (she lived and worked there for 8 years when she moved to England in 1985), and also spent 8 years working as a palliative care nurse at Trinity Hospice, Clapham. She is now an associate professor in palliative care and intellectual disabilities at Kingston University and St George’s University of London, where she has done research into the topic since 2001. Irene is passionate about improving the support people with learning disabilities receive at the end of life. She is particularly interested in finding ways to involve people with learning disabilities themselves and listen to their voices. She is in demand as an international speaker and has published books and articles on the palliative care needs of people with learning disabilities.
Specialist Advisory Group
The trustees are supported by the Specialist Advisory Group to help with the day-to-day responsibilities. This group includes people with learning disabilities, a family carer, and people working in the fields of learning disabilities or palliative care. The current members are:
Pat Charlesworth (representing people with learning disabilities; based in London)
Peter Allum (representing people with learning disabilities; based in London)
Jean Willson (representing family carers; based in London. Winner of the Linda McEnhill Award 2014)
Amanda McKie (coordination and support for PCPLD Network Area Groups; Matron Lead for Learning Disabilities, Huddersfield)
Louise Jenkins (Strategic Liaison Nurse for Secondary care & Tertiary care, Hertfordshire county council learning disability services)
Allison O’Donnell (Practice Development Nurse, Specialist Learning Disability Services, Greater Glasgow & Clyde. Winner of the Linda McEnhill Award 2013)
Gillian McGee (Team leader, Key Housing for people with learning disabilities, Clydebank. Winner of the Linda McEnhill Award 2013)