About us

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The PCPLD Network is a charity. In 1998, a small group of learning disability and palliative care professionals came together, concerned by their experience that people with learning disabilities who were facing a life-limiting illness did not seem to access the same services or receive the same quality of service as the rest of the population. Together, they established the National Network for Palliative Care of People with Learning Disabilities (NNPCPLD), which later changed its name to the PCPLD Network.

Our aims have not changed much since those early beginnings. The PCPLD Network brings together service providers, people with a learning disability and carers working for the benefit of individuals with learning disabilities who have palliative care needs. Our ethos is that people with a learning disability should receive the coordinated support needed in living their lives to the full, until the end of their life. You can read this article from former PCPLD Chair, Irene Tuffrey-Wijne for more information about the Network.

Our annual reports and constitution, shown below, will give further information about current and previous developments within the PCPLD network.  Please also see our newsletters here.

TWITTER – We’re currently looking for someone to manage our Twitter account (@PCPLDNetwork) – if you are Twitter literate and are involved in the palliative care and learning disabilities fields, let us know if you’d like to take over our Tweeting!  Please email info@pcpld.org with some information about yourself and we’ll be in touch.

Pat Charlesworth and Peter Allum (members of the PCPLD Network Management Group)
Pat Charlesworth and Peter Allum (members of the PCPLD Network Specialist Advisory Group)

Annual reports:

Trustees Annual Report 2021-22

Trustees Annual Report 2020-2021

Trustees annual report 2019-20

Trustees annual report 2018-19

Trustees annual report 2017

Chair annual report 2016

Chair annual report 2015

Chair annual report 2014

Chair annual report 2013

Chair annual report 2012.

Chair annual report 2011.


Please click here to view our constitution


Complaints Procedure:

Please click here to view our complaints procedure