Welcome

The PCPLD Network is a voluntary organisation. In 1998, a small group of learning disability and palliative care professionals came together, concerned by their experience that people with learning disabilities who were facing a life-limiting illness did not seem to access the same services or receive the same quality of service as the rest of the population. Together, they established the National Network for Palliative Care of People with Learning Disabilities (NNPCPLD), which later changed its name to the PCPLD Network.

Our aims have not changed much since those early beginnings. The PCPLD Network brings together service providers and carers working for the benefit of people with learning disabilities who have palliative care needs. It is based on the belief that people with learning disabilities should receive all the co-ordinated help they need in living their lives to the full until the end of their lives.

The PCPLD Network aims to:

• Raise awareness of the palliative care needs of people with learning disabilities
• Share and promote ‘best practice’
• Enhance collaboration between all services providers and carers

What does the PCPLD Network do?

• Offer opportunities for networking, collaboration, exchange of ideas and development of ‘best practice’.  In some areas, there are local area groups that hold regular meetings for members.
• Recognise and share best practice through the annual Linda McEnhill Award
• Host conferences and support training opportunities

Membership

You are very welcome to browse the website, and take advantage of the information and expertise we offer. However, to benefit fully from opportunities to share and network, you may want to join us as a member.

Membership is free, and open to anyone who is interested in promoting excellent palliative and end of life care for people with learning disabilities.

Our members are mostly professionals, but also include some (family) carers, and some people with learning disabilities.

How to join

The PCPLD Network is a professional association of Help the Hospices

This website is funded and supported by Mencap