Links to Organisations
We are pleased to share your links that highlight work supporting the palliative care needs of people with learning disabilities. Please be aware that listing on this page does not imply endorsement by the PCPLD Network. Although regular checks are made, the availability of linked pages cannot be guaranteed.
ENFOLD provide bespoke courses and interventions to support the end of life care for people with learning disabilities. From diagnosis through treatment or into bereavement the training is based on both the most up to date research and significant hands-on experience of caring directly for people with learning disabilities who are ill or bereaved, their families and the professionals who care for them. A range of stand-alone courses are also on offer, including communication, end of life care and bereavement. The services is co-ordinated by Linda McEnhill.
Tel: 01223 573173
If you have a problem accessing healthcare, speak to the Patient Advice and Liason Service (PALS) at your local hospital, or contact the Mencap Learning Disability Helpline.
Mencap supports people with learning disabilities in a range of different ways. It works in partnership with people with a learning disability, and all their services support people to live life as they choose. Mencap’s work includes:
- providing high-quality, flexible services that allow people to live as independently as possible in a place they choose
- providing advice through our helplines and websites
- campaigning for the changes that people with a learning disability want.
Mencap is an individual membership organisation and their work is shaped by what their members tell us about their needs and wishes.
Mencap has strong relations with a local network of more than 500 affiliated groups. Their local groups are individual charities in their own right, but Mencap works closely with them to ensure people with a learning disability and their families have support locally as well as nationally.
For a wide range of resources, including resources on health care, visit here.
For details of Mencap’s telephone helpline, visit here.
Community Teams for people with Learning Disabilities
These are specialist multidisciplinary health teams that support adults with learning disabilities and their families and carers by assessment, by supporting access to mainstream healthcare, and by providing a range of clinical interventions. Your GP or social services department should have the details of your local team.
Hospice Information Service, Help the Hospices
Provides information about hospice care and about locally available hospice and palliative care services.
Macmillan Information Line
Provides practical, emotional, medical and financial advice for people affected by cancer in general. Also provides information about Macmillan services as well as other cancer organisations and support agencies.
Dorothy House Hospice Care Specialist education programme in palliative care, bereavement, team working and communication skills
Cruse Bereavement Care Offers free bereavement counselling, support and information to anyone affected by death (including paid carers).
This organisation supports people with learning disabilities, their carers and professionals around any issue of trauma, including bereavement.